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‘Just’ M.E.

At some point in everyday I think this can’t ‘just’ be M.E.  It could be when I notice a new symptom, or an old one gets worse, or perhaps just during a low point in the day, but every day without fail this thought will cross my mind. I don’t know of it means I […]

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Sensitivities

Sensitivities are funny things, even funnier when you have M.E. As far as I can remember nothing has ever really bothered me – oh apart from the smell of birds eye southern fried chicken when I was pregnant! These days I suffer with a whole new world of sensitivities.The common ones with M.E. are bright […]

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Birthday!

A lot of people don’t like birthdays, some pretend they aren’t happening, some get utterly miserable at the thought of being another year older.  I like birthdays. It is proof that I have survived another year which I think is something to celebrate, especially with M.E.  When every day is a struggle having a birthday […]

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Doodles and craft

I run a group called the M.E. Craft Collective over on Facebook. there are about 175 of us at the moment, but we are steadily growing in numbers. Our health and crafty abilities vary considerably, but it is great fun to show off what we have managed, ask for help and ideas, and be inspired […]

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Be the change you want to see in the world

This quote means so much. It is so true. Everyone complains about the world today, about how people don’t have the respect for each other that there used to be, about how everyone is looking out for themselves and not others. Yet at the same time a lot of the people complaining don’t go out […]

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Food and M.E.

When I started this M.E.. relapse in February 2013 I was getting all sorts of symptoms I had never had before. Chronic heartburn, indigestion, and dizziness to name a few. In June one of my friends suggested I try cutting out gluten. This was a challenge as bread and pasta have always been some of […]

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Pacing

Pacing is the best thing you can do if you have M.E. It means taking it easy, never doing more than you are capable of, in fact never doing as much as you are capable of. My specialist (in my teens) said never do anything today that you wouldn’t be able to do tomorrow. So […]

Every bug is scary

For most people catching a bug is inconvenient, and never very nice. For me catching a bug is one of the scariest things in the world. To start with you don’t know if its actually a bug or if it is a crash, a contamination of food, or just some lovely new symptoms to add […]

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Music, dancing and me

As a kid I remember always having music. My dad played double bass in a jazz band, some of my earliest memories are of going to gigs. As I grew up I was always ‘borrowing’ my mums and my sisters cassette tapes and learning the words or making up a dance to go with them. […]

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Minimalism and me

I grew up in a house full of things. I know everyone lives in a house full of things, but this one really was full. My mum is from the school of ‘it will come in useful one day’. She has often been proved right, and when she has gotten rid of something within 6 […]